Sunday 25 August 2013

August 24-25 - Day 4 and 5

It's been a couple days since I've last written and not much has been happening concerning Evelyn's port IV. We talked with the head surgeon (the one who performed her surgery) and he had suggested instead of moving the port to insert a broviac or hickman to her existing port. It a tube coming out of her port and the needle is inserted in that tube instead of in her skin. In our eyes it sounded like a good option but after talking with our doctors they told us it wasn't a great long term solution, there was a higher chance of infection and she would be unable to do things like swimming during the next two years she will have this port IV. Our doctors had still (off the record) said moving the port up would be the best option but unfortunately this decision is left up to the surgeon because he is the one moving it. We asked for a second opinion but our surgeon is working until Monday so we are now waiting until then to figure out what is happening with Evelyn's port IV. The last two days Evelyn has started her chemo on top of her steroids. Giving her the chemo has been a quick process the last couple times - the nurses insert it into her IV and it drips quickly for about 20 minutes then flushes through. Our nurse stays in the room to watch Evelyn's port - make sure nothing is shifting and the chemo is going through the needle. Yesterday it was done twice and today only once. She's been feeling good so far and still making everyone smile. Here's a few more pictures:

We get a lot of visitors







This was at 11:30pm - someone wasn't tired so we wandered the halls



Five minutes after getting her needle reinserted - trooper!



Ice cream for dinner


Our nurses let Evelyn play with all the medical tools






She loves to wash her hands



Doing puzzles while her chemo goes through (notice the red liquid through her IV tube)



Charlotte wasn't feeling well and had an ear infection Friday and Saturday so I went to see her for the afternoon since she hasn't been able to come to the hospital 





Almost asleep after a walk in the halls



Playing doctor with Daddy



Good Morning Sunshine :)


Went for a walk outside this morning 



Even though Evelyn is here and going through this she hasn't stopped being a 1 1/2 yr old - I turned around and she was up there giggling


Then had pulled half the paper towels out and put them in the sink :)


New hat from Grandma Horsman


Psalm 119:165 "Great peace have those who love your law, and nothing can make them stumble"

Lindsey and Steve

  

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