Evelyn Horsman: May 12

Thankfully after a crazy couple of weeks things have settled down and the last two weeks have been pretty quiet. Steve was on afternoons last week so he tagged along with Evelyn and I to clinic on Thursday. Evelyn got a check up and she unfortunately lost 2 pounds over the last two weeks. We think Evelyn's been dealing with a bit of nausea the last couple weeks and hasn't had much of an appetite for anything. Because of this we have had a hard time keeping her sugars up and her readings have been really low - usually below 3.0. Sitting in the 2.0-3.0 range can put her at higher risk for seizures, among other things. We were advised for the weekend to give her Pediasure if she isn't eating much, try to give her the specific foods to maintain those sugars and continue with the cornstarch in her nighttime bottles. Our doctor also wanted us to check her sugars at midnight to see where they are sitting. This is a steroid week and usually her sugars go up - which they have but once she is off the steroids again if her sugars continue to stay below 3.0 Evelyn will have to get the NG tube put back in. That way we will be able to put the necessary nutrition down the tube to maintain her sugars instead of trying to convince her to eat what she needs to eat. Of course this is the last thing we want since Evelyn has been doing well without the NG tube and she's very proud to show everyone how well she does without it. We are willing to do whatever we can before we go back to the NG tube. This is a little disheartening because we expected to see her sugars rise since going off one of her chemo meds but instead they have continued to dip each week. Keeping track of and maintaining Evelyn's sugars is and continues to be a challenge - it takes a lot of time and effort to keep her sugars maintained but we continue to put do our best, say a lot of prayers for patience and hope her sugars stabilize soon. When we look at the big picture Evelyn is and has been doing really well over all so we focus on that and daily thank God for His hand in this journey. I'll end with pictures :)

Fun times with Charlotte