Evelyn Horsman: April 3

We are slowly making our way to the surface of a very rough steroid week - Evelyn's symptoms started full force almost three days earlier then normal so its made for a very long weekend. On a positive note Evelyn has been doing well taking her meds orally even through the nasty steroids. We are so proud of her especially since most mornings and nights she is required to take 3-5 different meds. Lately she has insisted on administering them all by herself - picking the order, saving the 'best' for last and squirting each syringe into her mouth :).
Here is a little glimpse of the way we stay organized and on top of all her different meds

Once again last Thursday we met with the endocrinologist to discuss Evelyn's ever present low blood sugar numbers. A few weeks ago it was suggested to put cornstarch in her night time bottle - this should have brought her sugars up and maintain them through the night so her numbers weren't so low in the mornings. Unfortunately this wasn't helping and her numbers were at her lowest, dipping to 2.4 some mornings (the normal range for her age is 6-12.0). Two weeks ago we had to start adding the cornstarch to her naptime bottle as well to see if that made a difference. We gave it the week and the numbers still seemed to be all over the place so we have had to add yet another bottle with cornstarch during the day. It's been hard and confusing to determine a pattern/solution since the low blood sugar is caused by a chemo med and not diet, therefore we continue to record her numbers and food intake and meet with the endocrinologist doctor every week to make any needed adjustments to keep those numbers up. On a side note cornstarch is high in carbohydrates so we've noticed Evelyn's weight has jumped since adding all this cornstarch - she has gained 5lbs in the last three weeks and now fits in most of Charlotte's clothes :).

A week ago we welcomed another little blessing - Waverly May - a new niece to us and cousin to the girls. All is well with Kevin, Kara and Waverly and the girls are so in love. She's been spoiled with lots of snuggles from both of my girls, especially Evelyn :)