October 8 - Day 49

It's been a couple weeks since I last posted and hopefully from here on out it will be more of a weekly post since not much is happening on the days in between treatment. Last blog post I mentioned Evelyn had a body rash, diaper rash and mouth sores and I'm happy to report they've all cleared up so she is feeling much more comfortable and happy. We've had a couple clinic visits in the last two weeks - one for bloodwork and another to get her NG tube put back in (it was yanked out by accident over the weekend) and since Steve is back to work full time, hospital visits are just us girls :). This coming Thursday Evelyn will receive chemo through a lumbar puncture to kill any micro cancer cells that may be developing in her brain and spine. This will be the first of four in a row - next week she will have one on Tuesday and Thursday then again the following Thursday. Evelyn has been off her steroids for about two weeks now and on Thursday she starts back on them for five days then off for two weeks, on for five days etc. For the next two weeks we will be administering a chemo treatment at home again - this one will be given in two week stretches then off for a week for the next little while. All the medications can get really confusing so having a chart on our fridge helps keep us on track. Here is a little glimpse into what we've been up to:

Enjoying the nice weather

Lazy days and silly faces

Everyday happenings

Waiting at clinic

 

A tired Daddy home from work :)

 

 

Lindsey and Stephen

 

Matthew 6:33,34 "But seek first his kingdom and his righteousness, and all these things will be given to you as well. Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own."